This report is for all products sharing this active ingredient. For more details, please use our Workbench for research on individual brands like Photofrin.
The quarterly trend chart illustrates changing levels of adverse events over time. Results from both the FDA Adverse Event Database (FAERS) and adverse events extracted from social media by Druginformer are plotted side-by-side for easy comparison.
The proportion of people completing user reviews who complained about a side effect.
The proportion of social media adverse event complaints for each adverse event type.
The proportion of FAERS (FDA) adverse event complaints for each adverse event type.
Social Media (Online Comments) |
FAERS (Reports Submitted to FDA) |
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---|---|---|---|---|---|---|---|---|
Side Effect | On Drug Label |
Overall Alarm |
Reports | % of Reports |
Alarm | Reports | % of Reports |
Alarm |
* DrugInformer calculates alarm using a proprietary algorithm. Alarm should not be taken as an ofiicial signal from the FDA or other regulatory entity.
Druginformer Identified Side Effects: None
Posted By Mothergoose in ic-network.com on September 28, 2011 @ 12:00 am
“I am sensative to lots of things. I get a B12 shot every week with no problem.”
Druginformer Identified Side Effects: None
Posted By glassd18 in ic-network.com on September 28, 2011 @ 12:00 am
“Polygon. I was a vegetarian for a couple of years before my IC really began to have worsening systems. I really should try some Tofu just to see how I do, but then again I would have to supplement B...”
Druginformer Identified Side Effects: None
Posted By Mydnight42 in ic-network.com on September 28, 2011 @ 12:00 am
“Cystoprotek I have a question. I use to take Elmiron but it affected my liver enzyme so I had to quit taking it due to the time I had my thyroid destroyed and they were going to put me on S...”
Druginformer Identified Side Effects: None
Posted By Judy Gee in ic-network.com on September 28, 2011 @ 12:00 am
“your picture just had to comment on how cute you look in this picture. Hugs, JG”
Druginformer Identified Side Effects: None
Posted By glassd18 in ic-network.com on September 27, 2011 @ 12:00 am
“Evanseri, I am glad you are having good results too. I know when I run out my bladder feels it right away. Hopefully something more with be found out about this crazy disease, and soon!! F...”
Druginformer Identified Side Effects: None
Posted By lauraheather in ic-network.com on September 27, 2011 @ 12:00 am
“What is Cystoprotek Can you tell me what cystoprotek is? Is it a prescription or a supplement? Where do you get it and how do you get your insurance to pay for it? I would do anything to fin...”
Druginformer Identified Side Effects: None
Posted By polygon in ic-network.com on September 27, 2011 @ 12:00 am
“I hope they make a vegetarian formula if possible. I'd really like to try it out.”
Druginformer Identified Side Effects: None
Posted By glassd18 in ic-network.com on September 27, 2011 @ 12:00 am
“Polygon How do you manage a vegetarian diet with IC? I used to be vegetarian, but really got confused after my diagnosis and thought I couldn't eat soy. I have pretty low B12 too, and I'm so sensitive...”
Druginformer Identified Side Effects: None
Posted By evanseri in ic-network.com on September 8, 2011 @ 12:00 am
“I have been taking cystoprotek for about two months now and I think it is great. I started taking it during my longest flair ever (two months) and I began to feel better within a few days. I have had ...”
Druginformer Identified Side Effects: None
Posted By Freckles in ic-network.com on September 8, 2011 @ 12:00 am
“Thanks Glass...... That was so nice. What kind of job did you have? I was an accountant, well still am. I'm trying to start a business from home so that I can rest when I need to, pee when I need...”
* Warning: The facts and figures contained in these reports are accurate to the best of our capability; however, our metrics are only meant to augment your medical knowledge, and should never be used as the sole basis for selecting a new medication. As with any medical decision, be sure to work with your doctor to ensure the best choices are made for your condition.
* About FAERS: The FDA Adverse Event Reporting System (FAERS) is used by FDA for activities such as looking for new safety concerns that might be related to a marketed product, evaluating a manufacturer's compliance to reporting regulations and responding to outside requests for information. Reporting of adverse events is a voluntary process, and not every report is sent to FDA and entered into FAERS. The FAERS database may contain duplicate reports, the report quality is variable, and many factors may influence reporting (e.g., media attention, length of time a drug is marketed, market share). For these reasons, FAERS case reports cannot be used to calculate incidence or estimates of risk for a particular product or compare risks between products.
User Voices
The following are comments from users that experienced side effects while taking Porfimer Sodium
Photosensitivity Reaction
“... esophogus, was greatly effective inn treating the cancer. However, due to the side effects of the drug, I was unable to go outdoors into the sunlight or in strong lights . After avoiding sunlight for o...”
Source: Photofrin IV : User Ratings covering u...
View full report on Porfimer Sodium related photosensitivity reaction
Did the author experience photosensitivity reaction while taking photofrin?
What is this?Skin Hyperpigmentation
“... of the drug, I was unable to go outdoors into the sunlight or in strong lights. After avoiding sunlight for over a month, I still encountered severe darkening of my face and arms . Also, my Penis and k...”
Source: Photofrin IV : User Ratings covering u...
View full report on Porfimer Sodium related skin hyperpigmentation
Did the author experience skin hyperpigmentation while taking photofrin?
What is this?Injury
“... photosensitizer in North America, Europe and Japan is porfimer sodium (Photofrin® [Axcan Pharma Inc, Birmingham, AL]). Photofrin® is given intravenously, results in deep injury and is associated wit...”
Source: Ablative Techniques for Barrett's Eso...
View full report on Porfimer Sodium related injury
Did the author experience injury while taking photofrin?
What is this?